The doctor appointment with the radiation PA went better than I expected. She was more positive, saying that we generally don’t even do the mri for threee months after radiation because it’s continuing to work. She noticed many of the tumors in my brain looked like they are dying from the inside out–(which is what they do). They each were see-through in the middle, which means there is reason to believe they will either be inactive, or reabsorbed into the body. Yes there are new tumors, but the Tarceva may get those–I say, go get ’em! I will get another MRI in early November to see what progress has been made.
My Sweet brother Joe (the sibling just younger than me) is here visiting from AZ with his wife, Melissa. It’s great to have them here–cooking great food. Joe is a nurse, so a wealth of great medical advice. The bad news at the DR this morning was I’m still losing weight. She gave me some medicine to try to stimulate my appetite–yucky stuff. I’m sipping a 30 grams of protein nutrition drink right now!–Eating is going to be my job for a little while I guess. I can feel the Tarceva working on the bad stuff in my body, but I think it’s also causing the nausea to be much worse-that’s ok. I think my body will adjust to it.
I got a cute card from Cindy mason with a quote from John Wayne, “Courage is being scared to death, but saddling up anyway!”
Yesterday Kalani spent some time with Julie Staples learning about music therapy on the harp. Julie helped her put together a binder of hymns to play for me. Thank you so much Julie–I cried over the beautiful hymns in the book and your thoughtfulness! I’ve been telling Kalani that when she plays it’s therapy for me, not realizing there is science behind it. I know my body just feels it! She played through a good part of the book yesterday, and I loved it.